Tuesday, March 31

CDH Awareness Day

Today we're wearing turquoise to celebrate our nephew Jake's life and raise awareness of Congenital Diaphragmatic Hernia (CDH).

We believe the more we know about this birth defect, the better prepared doctors and families will be to help children born with CDH.

Miss you, sweet boy.

CDH in layman terms: At my sister's 20-week appointment they noticed that there were some irregularities in the ultrasound. They realized Jake had CDH, a hole in his diaphragm. For Jake, that allowed his intestines to move up into his chest cavity. Among other things, that put his heart on the wrong side and didn't allow his lungs to grow properly. After he was born, they were able to patch the hole and allow the organs to move into the right spots. He received excellent care at CHOP (the Children's Hospital of Philadelphia). Unfortunately, his little body wasn't able to overcome the challenges, and he passed away when he was 6 months old. We really do miss that little guy.


Hksedwick said...

Thanks for the information.

Mortensen Baby Farm said...

I love this picture! I seriously miss him! What a day!

The Richardsons said...

My friend's son was born with CDH but survived despite the bleakest diagnosis. I actually listened to an interview with a professor from BYU who studies the healing/scarring of tissue, and had just concluded research finding that fetus' with CDH who were operated on in the womb showed no signs of scarring or any other indicators that the surgery had even been done! I really hope that they can continue to make progress in this field!