Today is Congenital Diaphragmatic Hernia (CDH) Awareness day! CDH is the birth defect our nephew Jake was born with, and in his case, there was a hole in his hernia that let organs like the intestines grow up into his chest cavity, leaving no room for his heart and lungs to develop. Hospitals like the Children's Hospital of Philadephia where Jake was treated are doing amazing things (the staff there was incredibly talented and gave him the best of care), but unfortunately many cases still end in fatalities, like our little fighter.
No two cases are alike, and there needs to be more research and improved education so that doctors can better help these children survive.
You can learn more about increasing awareness at Breath of Hope, Inc. Wear turquoise today (I know, not my best color either) to support the cause!!
2 comments:
what a cute little guy!
It's actually breathofhopeinc.com. The other one is an asthma site, figured that one out after some confusion!!!
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